Full Paper

Research Data Description From Structures Within and Around Metadata

  • Julianna Pakstis 1 ORCID
  • Christiana Dobrzynski 2
  • Perry Evans 3
  • Stephanie Huang 1
  • Ene Belle 1
  • Allison Olsen 1
  • Hannah Calkins 1
  • 1 Children's Hospital of Philadelphia, United States
  • 2 Illumima, United States
  • 3 Spark Therapeutics, United States
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Open access CC BY 4.0
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Abstract

The Arcus Archives at the Children’s Hospital of Philadelphia (CHOP) aims to collect and describe research data from across the Research Institute. To accomplish this, the Arcus Library Science team has established processes, structures, and descriptive metadata schemas informed by all phases of the research data preservation and reuse lifecycle at CHOP including archiving, cataloging, display, and usability. This paper introduces the Arcus Archives metadata schema and the key structures it relies upon. Specifically, this paper explains how a small set of dataTypes subfields within a hierarchical, archivally informed metadata structure utilize a shared file directory organization structure to thoroughly and accurately process, catalog, and surface for discovery metadata about petabytes of archived pediatric research data from multiple and growing data modalities. The metadata schema itself is flexible but consistent enough to apply to a myriad of data types produced during the conduct of pediatric research. Each metadata record reflects the unique archival arrangement done for each collection. It encompasses the framework of a shared recommended “project template” file directory structure which includes manifest and protocol files that allow for meaningful capture and organization of numerous complex data files and their relationships to one another.

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Article details

Published
Section
Full Paper
DOI
10.23106/dcmi.953336477
License
CC BY 4.0 · open access

Described in Dublin Core

This article's metadata, in the vocabulary these proceedings are about.

dcterms:title
Research Data Description From Structures Within and Around Metadata
dcterms:creator
Pakstis, Julianna
Dobrzynski, Christiana
Evans, Perry
Huang, Stephanie
Belle, Ene
Olsen, Allison
Calkins, Hannah
dcterms:date
2024-01-31
dcterms:identifier
doi:10.23106/dcmi.953336477
dcterms:publisher
Dublin Core Metadata Initiative
dcterms:type
Text
dcterms:language
en
dcterms:rights
CC BY 4.0